I have very slowly decreased the dose of Prednisone every 4 weeks. As soon as I came down to 20 mg I started to notice not so pleasant symptoms coming back. Just a little bit at a time. Then last weekend I felt as if I lived in the bathroom with very bad diarrhea. This past week I have not gotten much sleep, just constantly having to go to the bathroom. I am back to my old exhausted self again. Yesterday I had some pretty bad bleeding too.
Yesterday I did manage to go for a 45 minute walk, so it is not quite back to square one. Yet.
I guess my hope is now the Remicade infusions which will start on Thursday next week, unless they re-schedule again...
This is so frustrating. I hate ulcerative colitis.
Jag HATAR ULCERÖS COLIT!!!